About

Harry's Hydrocephalus Awareness Trust (Harry's HAT)

Yateley based, Harry’s Hydrocephalus Awareness Trust (Harry’s HAT) is a user-led national charity dedicated to improving life for children with hydrocephalus and their families. Hydrocephalus, sometimes called “water on the brain,” is one of the most common reasons babies and children need brain surgery. (every year 1 in every 770 babies born will develop the condition). Despite this, awareness remains low and families often feel isolated at a time when they most need support. We are here to change that. We provide parents with clear, practical resources and a community of support so that no family feels they are facing the condition alone. We also fund training and education for health professionals, ensuring children receive the best possible care from diagnosis onwards. Our Get-A-Head campaign focuses on the importance of early diagnosis. Spotting hydrocephalus quickly can prevent complications and transform a child’s long-term outlook, but symptoms are too often missed. Through this campaign we give parents, carers and frontline professionals the knowledge to recognise signs early and act without delay. To amplify this message, we work closely with both local and national media. By sharing the voices of families and experts, we raise the profile of paediatric hydrocephalus, influence public understanding, and drive conversations that bring about lasting change. Every child deserves the best possible chance to thrive. At Harry’s HAT we are building a future where hydrocephalus is better understood, better managed, and never faced alone.

Harry's Hydrocephalus Awareness Trust (Harry's HAT)

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